Feel free to add your story to this blog. You can come back and give updates anytime. I think it will help others to hear a lot of different stories. Well, It is late and I am tired. Everyone have a great Mother's Day tomorrow!!!
Disclaimer
Disclaimer
The owner of this I.C. blog and/or members do not engage in the practice of medicine. The leadership body is not a medical authority nor does the leadership body claim to have medical knowledge. The volunteers who lead this group are not trained to provide professional group therapy services. In all cases, the leadership body of this I.C. Support Group recommends that you consult your own physician regarding any course of treatment or medication discussed in the group. Any products or therapies described should not be construed as an endorsement.
Sunday, May 13, 2012
you can post about good or bad days
Well, I have my story on the IC-network.com and they are all great there. Jill has been just wonderful and know what we all need to see and hear. I am just a little upset about a blog that I went to and of course I would never use their name but my story wasn't good enough because it wasn't positive enough. Well, you know what people are going to go through a lot when dealing with IC. You can't only tell the good parts. The not so good parts which are hard for some people to talk about can be very important too. You know I will be the first to tell you that yes I would like to be able to tie it all up in a nice pretty bow at the end. I have had this disease for 22 years and NO I am still not better. I guess my story should be left out just because I don't have the miracle drug that has cured me. Some of us will deal with IC forever. Not many of us will but until a CURE is found then I am still waiting and I am not complaining. Any way if you want to tell your story here please tell it just like you want it told. You don't have to shorten it or take out things that are old procedure because people still want to know where you started and where you have gone.
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